So Frustrated

Oh I could crush a grape at the moment.  Part of H's MS at the moment is that on an evening his legs feel like they are burning and he has uncontrollable twitches.  In bed, he can wake me up he's twitching so much - though strangely he can sleep through them :-)

So the MS team at the hospital wrote to our GP to ask him to prescribe a certain drug.  Hubby went today to ask for the drug and the Dr refused to prescribe it, saying he'd never heard of it.  Now if I received a letter with a new drug on it I would google it to look into it.  So he has prescribed a drug which H's Dad has been taking with some major side effects so Hubby won't even get the prescription filled and the drug only stops the burning not the twitching.

All I can suspect is that either it's a cheaper drug or the Dr gets a bonus for prescribing it.

On another note the MS Physio arranged for a chair to be delivered this week for Hubby to test out to see if it makes it easier for him to get up and down.  Shame it's obviously come from a smoker's home and now my living room absolutely reeks. - it gets collected next week!!!

The NHS is sadly not fit for purpose with long term illnesses and it is so frustrating - ARGH.

Rant over!!!

Making me HAPPY this week

This week has been loads of fun.

In no particular order

1) Mum and Dad coming down for a curry to say thank you for all they do for us.  The last time they came down for a takeaway (2 years ago), H had a relapse and it was the start of a very hard time for us.  Tonight, we have laughed, listened to a new Christmas CD and had a good time.

2) Getting the tree up.  Mum helped H wrap my present and Dad and I got the tree up - it still needs some decorations adding but it is largely done - and I was thinking of not putting one up this year :-)

3) I haven't read much this month - too many handmade gifts to make, but I have started on my Christmas reading.  I do try and find a Christmassy book to read every December.  I am currently reading 'Wish Upon A Star" by Trisha Ashley.   I haven't read much, but I am enjoying it so far.

4) Christmas lunch with G and C and to make it better it'll be C's turn next year :-)

5) H having Physio and starting to walk better with his crutches.  Don't get me wrong, he needs his wheelie for most things, but watching him walk upright in the house is amazing.  It's been a long time coming.  Not sure, if his 2 sessions of physio have helped him achieve this, or just given him more confidence in his walking but I am happy that he is able to walk better - saying that I think he's just face planted upstairs - at least there has just been a loud bang............

A Grand Day Out

My friends G and C and I try and meet up fairly regularly throughout the year.  We all used to work together in Leeds and were determined not to loose touch when first G and then I left work.

Yesterday it was G's turn to do the Christmas do and what a day it was.   Although I was up early yesterday I went so wrong and felt all a dither.  Although I had loads of time before I had to catch the bus, I somehow started ironing and suddenly I had 8 minutes to get out of the house and onto the bus.  I forgot the wine for lunch, the soft drinks and my mobile phone and by the time I was sat on the bus, I wasn't even sure I was on the right timed bus.........  thankfully by the time I got to G's I was a little calmer and less rushed.

Thank you G is was lovely and I do love spending time with you and C.

Me and G

G & C

A few Advent gifts perhaps......

 Photos courtesy of C (thank you).

A new job?

I'm a big fan of trying to shop local.  I use my local Post Office, Hair dressers, charity shop and more recently the wool shop.

Tomorrow I am helping out in the wool shop and I am part excited and part terrified!  I am only helping out as and when she needs someone to cover for her, but due to illness it might be a little more in the new year.

Is it normal to worry about all the small things - how to use the till, not selling things for the wrong price?????

I am hoping it will help re-build my confidence in myself and help out someone who needs a hand for the near future.  Maybe I'll even get a discount on my wool :-)

Comfy

Do you think she's comfy?  She's even got the remote!!!!!!

The blanket she is on was knitted by my Grandma (and my Mum thinks some of the squares may have been from her Grandma) and given to me when I went to University when I was 18.  It is precious and is the last outing it's having. It will be washed this week and put away (it is just starting to get damaged).  The blanket over her is H's new blanket.  We spoil our pets don't we!!!

Making me HAPPY this week

It's that time of the week again and I start thinking about positive things whilst in a peeved mood, so I am thinking, oh hang it, I'll miss this week.  But then I think no, being peeved for an hour or 2 shouldn't spoil the rest of the week.  So here I am with the things making me happy this past week.

1) Looking at old photographs whilst de-cluttering.  Anyone know where this was taken?  Yup, that's me in the pushchair - I haven't changed much - I still go round kicking one foot into the air and grinning madly................

2) Opening the advent box.  I got a fab knitted snowman.  He is a little scary as he has no eyes, but the rest of him is lovely :-)  Hubby has opened 2 of the gifts and found chocolate each time - how does he manage that?

3) Spending the day with my Mum.  We finished (most) of the Christmas shopping, had lunch, shared a bottle of wine and just had a lovely day together.  So glad we can do this now.


4) Walking Anni in the woods.  I don't like to do it by myself but we did it and she loved running through ALL the mud she could find.  I am so happy we got a black Lab who loves mud.........

PS Is it too early to open the Christmas chocolates????????


5)  H has opened the choccies - hooray.

Advent has started

Whoop, advent has started.  I tried to wait until Hubby was home to open my advent box but I couldn't wait.  I have one this year and I am really looking forward to the next 24 (well 23 now) days.

I may have cheated and found number 1 before the big day....... Shush, but don't worry the creator of this box doesn't follow my blog :-) See it there, the little white one??

How about now?  Want to know what was inside?

A fabulous little candle, but way too cute ever to be used.

Thanks M.

On another note, I was slightly late in getting box number 4 out to my friend C.  So I took the decision to post the first 4 days to her (H will deliver the rest tomorrow).  Now, although I can't tell you what the 4 gifts are, they were so little and light I was shocked to find that postage cost me £1.71 and the PO wonder why people are no longer sending so much post......